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Have you heard of Birdshot Chorioretinopathy?
Birdshot is a relatively new auto-immune, chronic, bilateral, potentially blinding posterior uveitis that affects adults of all ages. There is emerging evidence that it may affect children too. Birdshot is poorly understood, often undiagnosed and no current database exists. However, an initial survey, undertaken by patient experts suggests there are at least 400 people in the UK with this disease.
A leaflet about the organisation is attached with more information on the disease available at http://birdshot.org.uk/blog/index.php/birdshot-overview
Rea Mattocks and Annie Folkard are both diagnosed with Birdshot Chorioretinopathy and are patient experts, and they have asked for their organisation The Birdshot Chorioretinopathy Uveitis Society (BUS) to be brought to your attention. They have been in touch to tell us about a Patient Day is being organised in conjunction with staff from Moorfields Eye Hospital. This is to take place in the Autumn, on Saturday 11th September at University College London. It is free to attendees thanks to a bursary and a grant for the event, although a £20 returnable deposit is required.
The day is intended for both patients and healthcare professionals. Details can be found on the Birdshot Uveitis Society website at http://birdshot.org.uk/blog/index.php/patient-day
To raise awareness of the disease and to bring the Patient Day to the attention of the widest possible audience it would help enormously if you could mention this to your clients/service users via your own newsletters or other communications methods.
